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A cross‐sectional study of distress: A cancer response

A large proportion of patients (29%) continued to experience high distress (>3 according to the Distress Thermometer) even after treatment was completed. Patients experienced several problems after treatment had ended such as fatigue (44%), sleep problems (34%), worries (31%), pain (31%), tingling in hands and feet (31%) and problems with memory/concentration (30%). Patients with financial/insuran

https://www.lupop.lu.se/article/cross-sectional-study-distress-cancer-response - 2025-12-19

The Social Network: How Friends’ Online Behavior and Belongingness Needs Influence Political Activity

Are people more likely to become more politically active through social media when they observe that their friends are active? Previous research has shown that an individual's likelihood of engaging politically is influenced by observations of how friends act through social media, but relatively little is known about how such social influence through social media interacts with personality feature

https://www.lupop.lu.se/article/social-network-how-friends-online-behavior-and-belongingness-needs-influence-political-activity - 2025-12-19

The Data Registry of the European Competence Network on Mastocytosis (ECNM): Set Up, Projects, and Perspectives

In an attempt to learn more about the behavior and evolution of various forms of CM and SM, the European Competence Network on Mastocytosis (ECNM) initiated a mastocytosis registry in 2012. In this article, the set up and start phase of this registry are described New publication in The Journal of Allergy and Clinical Immunology: In Practice

https://www.lupop.lu.se/article/data-registry-european-competence-network-mastocytosis-ecnm-set-projects-and-perspectives-0 - 2025-12-19

Non‐immune hydrops fetalis was rare in Sweden during 1997‐2015, but cases were associated with complications and poor prognosis

There were 309 cases of NIHF at birth corresponding to an incidence of 1.6 per 10 000, lower than in previous studies. NIHF was more frequent in mothers aged ≥35 years and with a history of stillbirth. Preterm delivery occurred in 77.7% in the NIHF group, including 31.7% before 32 weeks of gestation. Multiple births and Caesarean sections were reported more frequent in the NIHF group. NIHF was ass

https://www.lupop.lu.se/article/non-immune-hydrops-fetalis-was-rare-sweden-during-1997-2015-cases-were-associated-complications-and - 2025-12-19

Urolithiasis in second‐generation immigrant children younger than 18 years of age in Sweden

A nationwide study of individuals residing in Sweden. Urolithiasis was defined as having at least one registered diagnosis of urolithiasis in the Swedish National Patient Register between January 1, 1998 and December 31, 2015. Cox regression analysis was used to estimate the relative risk (hazard ratios (HR) with 95% confidence intervals (CI)) of incident urolithiasis compared to individuals with

https://www.lupop.lu.se/article/urolithiasis-second-generation-immigrant-children-younger-18-years-age-sweden - 2025-12-19

The “A” of FAIR – As Open as Possible, as Closed as Necessary Show all authors

In order to provide responsible access to health data by reconciling benefits of data sharing with privacy rights and ethical and regulatory requirements, Findable, Accessible, Interoperable and Reusable (FAIR) metadata should be developed. According to the H2020 Program Guidelines on FAIR Data, data should be “as open as possible and as closed as necessary”, “open” in order to foster the reusabil

https://www.lupop.lu.se/article/fair-open-possible-closed-necessary-show-all-authors - 2025-12-19

Survival in 31 670 patients with thin melanomas: a Swedish population‐based study

Clinical and histological parameters were obtained from the Swedish Melanoma Registry for patients diagnosed with thin CMM between 1990 and 2017. Patients were followed until the end of 2017. MSS as well as CMSS for different thickness groups were calculated using the Kaplan–Meier method and Cox regression analyses were used to calculate for survival differences between thickness groups. New publi

https://www.lupop.lu.se/article/survival-31-670-patients-thin-melanomas-swedish-population-based-study - 2025-12-19

Communication ability and communication methods in children with cerebral palsy

Communication ability and method were related to each other and to age, gross motor function, and manual ability. Aided communication methods were more frequently used among older children. The more functional the communication was, the less use of unaided communication occurred. Different communication methods were used across all Communication Function Classification System (CFCS) levels. Speech

https://www.lupop.lu.se/article/communication-ability-and-communication-methods-children-cerebral-palsy - 2025-12-19

Parental anxiety after 5 years of participation in a longitudinal study of children at high risk of type 1 diabetes

Parents of children participating in screening studies may experience increased levels of anxiety. The aim of this study was to assess parental anxiety levels after 5 years of participation in the Diabetes Prediction in Skåne study. Associations between parental anxiety about their child developing type 1 diabetes and clinical, demographic, and immunological factors were analyzed. New publication

https://www.lupop.lu.se/article/parental-anxiety-after-5-years-participation-longitudinal-study-children-high-risk-type-1-diabetes - 2025-12-19

Psychometric evaluation of the Swedish Quality of Dyadic Relationships scale – homogeneity and construct validity

The Quality of Dyadic Relationships is a self‐assessment scale used to evaluate various aspects of relationship quality. Psychometric evaluation by the developers of the instrument has led to a nontested amended version. Further psychometric testing is thus warranted, and the aim of this study was to evaluate homogeneity, construct validity (in terms of concurrent, discriminant and known‐groups va

https://www.lupop.lu.se/article/psychometric-evaluation-swedish-quality-dyadic-relationships-scale-homogeneity-and-construct - 2025-12-19

Concussion incidence and recovery in Swedish elite soccer — Prolonged recovery in female players

Sport‐related concussions are an increasingly recognized health problem. Soccer is the most popular sport in the world although recent studies on concussion incidence are scarce. Here, a nationwide prospective study on concussion incidence, symptom severity, risk factors, gender differences, and return‐to‐play after concussion was performed in 51 Swedish elite soccer teams during the 2017 season.

https://www.lupop.lu.se/article/concussion-incidence-and-recovery-swedish-elite-soccer-prolonged-recovery-female-players - 2025-12-19

The Food Addiction Denmark (FADK) Project: a combined survey and register-based study

Obesity represents a tremendous global health problem. Studies over the past decade have suggested that food addiction (FA), that is, physical cravings for certain foods – high in fat/sugar – and addiction-like overeating of these types of food, is a likely contributor to the obesity epidemic. New publication in Acta Neuropsychiatrica

https://www.lupop.lu.se/article/food-addiction-denmark-fadk-project-combined-survey-and-register-based-study - 2025-12-19

The association of single nucleotide polymorphisms (SNPs) with breast density and breast cancer survival: the Malmö Diet and Cancer Study

Genetic factors are important in determining breast density, and heritable factors account for 60% of the variation. Certain single nucleotide polymorphisms (SNPs) are associated with density and risk of breast cancer but the association with prognosis is not clear. New publication in Acta Radiologica

https://www.lupop.lu.se/article/association-single-nucleotide-polymorphisms-snps-breast-density-and-breast-cancer-survival-malmo - 2025-12-19

End-of-life care among older cancer patients with intellectual disability in comparison with the general population: a national register study.

ncreasing life expectancy for people with an intellectual disability (ID) is resulting in more persons with cancer and a greater need for end-of-life (EoL) care. There is a need for knowledge of health care utilisation over the last year of life to plan for resources that support a high quality of care for cancer patients with ID. Therefore, the aims of the study were to compare (1) health care ut

https://www.lupop.lu.se/article/end-life-care-among-older-cancer-patients-intellectual-disability-comparison-general-population - 2025-12-19

Specialist psychiatric health care utilization among older people with intellectual disability - predictors and comparisons with the general population: a national register study.

People with intellectual disability (ID) face considerable barriers to accessing psychiatric health care, thus there is a risk for health disparity. The aims of the present study were 1) to compare specialist psychiatric health care utilization among older people with ID to that with their age peers in the general population, taking into account demographic factors and co-morbidities associated wi

https://www.lupop.lu.se/article/specialist-psychiatric-health-care-utilization-among-older-people-intellectual-disability-predictors - 2025-12-19

Preterm birth and risk of sleep-disordered breathing from childhood into mid-adulthood

Preterm birth (gestational age <37 weeks) has previously been associated with cardiometabolic and neuropsychiatric disorders into adulthood, but has seldom been examined in relation to sleep disorders. We conducted the first population-based study of preterm birth in relation to sleep-disordered breathing (SDB) from childhood into mid-adulthood. New publication in International Journal of Epidemio

https://www.lupop.lu.se/article/preterm-birth-and-risk-sleep-disordered-breathing-childhood-mid-adulthood - 2025-12-19

Pain in children and adolescents with cerebral palsy – a cross-sectional register study of 3545 individuals

Pain is a common problem for individuals with cerebral palsy (CP). In Sweden, 95% of children and adolescents with CP are followed in a national follow-up programme (CPUP), which includes data on pain. The purpose of this study was to investigate the prevalence of pain based on age, sex, gross motor function and source of report (self or proxy). Pain intensity, pain site, and how much pain disturb

https://www.lupop.lu.se/article/pain-children-and-adolescents-cerebral-palsy-cross-sectional-register-study-3545-individuals - 2025-12-19

Strength in numbers? The fragility index of studies from the Scandinavian knee ligament registries

The fragility index (FI) is a metric to evaluate the robustness of statistically significant results. It describes the number of patients who would need to change from a non-event to an event to change a result from significant to non-significant. This systematic survey aimed to evaluate the feasibility of applying the FI to findings related to anterior cruciate ligament (ACL) reconstruction in th

https://www.lupop.lu.se/article/strength-numbers-fragility-index-studies-scandinavian-knee-ligament-registries - 2025-12-19

British Cardiovascular Intervention Society registry framework: a quality improvement initiative on behalf of the National Institute of Cardiovascular Outcomes Research (NICOR)

The British Cardiovascular Intervention Society (BCIS) percutaneous coronary intervention (PCI) registry is hosted by the National Institute of Cardiovascular Outcomes Research (NICOR) at Bart’s Heart Centre and collects clinical characteristics, indications, procedural details, and outcomes of all patients undergoing PCI in the UK. The data are used for audit and research to monitor and improve P

https://www.lupop.lu.se/article/british-cardiovascular-intervention-society-registry-framework-quality-improvement-initiative-behalf - 2025-12-19